Tuesday, April 5, 2016

Moving Forward with MSA/Shy Drager

So much to consider each and every day.  I am having some fairly good success with my Deep Brain Stimulation system.  It is the overall improvement and health DBS enhances that I feel most thankful for.  My wife and I feel that I am getting a slower progression of my brain disease, thus my health is holding out longer than expected-- all because of these brain implants and regulator in my chest.  I was diagnosed with a Parkinsonian-Plus condition, possibly PSP or Shy Drager, 10 years ago next month! Wow! I am still here and still enjoying life.  I find being a grandfather to my two granddaughters to be the greatest thing of all about living on.  Also, enjoying retirement with my best friend and my spouse, who doubles as a great caregiver is a fantastic experience.

I am able to sing and play my mandolins and guitars.  I enjoy playing in the church band and singing with my friend at a nearby nursing home.  Loads to be thankful for!  I am still struggling daily with the usual dysfunctions caused by MSA/Shy Drager, but I can fight through it.  Walking with a cane or walker, putting thickener in my liquids, eating slowly and deliberately to avoid choking, taking my many medications on time (thanks to my spouse!) and watching out for slippery areas or things to trip on to avoid falling are all things I can work with if I keep a good attitude.

I am trying to write this blog to show that I have risen from the ashes of pain and disappointment to give back to all those who share so much with me.  Have a great day.  -- Dan


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