Mrs. Riddle, who also writes the Brain Support Network blog, announced this important news through her email list and pointed out that this is the first time such a complete and well defined explanation appears on the MJF website. This represents for me a change in tone or emphasis in the MJF Parkinson's Foundation scope of interest.
Robin Riddle CEO and Board of Directors for Brain Support Network |
Now, Robin has let us know that there is some quality information posted on the MJF website. By the way, Robin is the head of the organization known as the Brain Support Network, a group that plays a critical role in research to find answers and eventual cures to these devastating illnesses. They seek brain donations from patients and their families in order to give this tissue to the Mayo Clinic to be studied, posthumously. I am thankful for her work and that she and Karrie partnered to arrange for my donation to take place when such a time presents itself. It is a process which involves some work, some emotional strain and a modicum of expense (a donation determined by the donor and not defined by a fixed amount) to be arranged. I encourage you to consider doing what we have done because it is a process that will provide answers about the condition you or your loved one suffered from, as well as making a major contribution to the body of work researchers are putting together to find answers and solutions to these diseases.
Thank you, Robin, for being there to share information and leading the way in this important donation process leading to discoveries that will help those who come after us.
I am also grateful to Mr. Fox and the MJF Foundation for Parkinson's Research for making this educational information about Parkinson's Plus a priority on your website. It means a lot to me and I am sure to others, as well.
Blessings, Patient-Online