game so much.
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| Stephen, Me, Mark (back), Daniel (Front Rt.) |
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| Mark and I |
The timing of this special occasion preceded by chance the sudden need for my generator for my DBS to be replaced. I am scheduled for surgery on December 1, 2016. It is a fairly simple procedure and will require only a few hours in the hospital. The area in my chest where it is located will be opened up, the old one unplugged and the new one plugged in. Then, the new generator will be placed in the scar formed pocket under my collarbone and plugged in to the connections to my two brain implants. The area will be closed after determining if the unit is working. The settings will be made according to my personal condition during this time.
I am seeing a new (to me) movement disorder specialist. She is a neurologist with special training and experience beyond what a neurologist receives. She deals with Parkinson's Disease and other diseases that have movement disorder problems similar to PD. I do not have Parkinson's, as I am sure you know. I do have a movement disorder which includes parkinsonism and other abnormal movements. The accompanying autonomic failure has lead to my current diagnosis of a Parkinsonism Plus syndrome, such as Multiple System Atrophy. PSP and CBD have also been considered.
Meanwhile, I am looking forward to my generator performance improving and thus my symptoms should also improve. I have begun to have trouble with balance, falling and fine motor coordination resulting in trouble with tasks requiring accuracy with my hands. Take care my friends! -- Patient-Online
6 comments:
What an awesome day, Dad. Thanks for putting it together. You were super tough and sat it out in the cold rain! Love, -S
Hi Stephen, Thanks for posting! What a joy it was to have you there with your brothers and I. You are a great son and you know just how to help me. Love, Dad
Dear Dan,
I'm glad that you had a great time at the game. We will be praying for your surgury on the 1st. We may come before Christmas. I would like to come up from SD and visit you. I have had my health challenges with Afib this past summer, but with God's help my heart is back to normal and I am trusting in God's healing everyday. Love, Gary
Hello Gary, Glad your heart is stabilized, enough at least. I hope that continues. Thank you friend! Dan
Dear Dan - I was led to your blog after going through our blog (msainsouthafricawithsonja.blogspot.com) and finding a comment of yours there on one of Sonja's posts. Sadly she has now reached the stage she dreaded - Locked in Syndrome. I am exploring ways to help her with communication. Such lovely happy photos of you and your boys. Kind regards and best wishes to you Dan.
Hi Karin! I posted a reply to this one under Music, Mandolin, etc. post. I want to send our heartfelt empathy to you for your dear Sonja's suffering. Please give her our hugs and share our caring. I posted a song on the top right of this blog. Would you please put a new link to our www.wewillgoon.com, which is our new dotcom we secured? We want to encourage more people, and you get a lot of traffic! :) Thanks again Karin! (Dan and Karrie)
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