Monday, January 16, 2017

Pastor's Early Influence Goes On Years Later

If you have known me long, or read my book, I Will Go On: Living with a Movement Disorder, you may recall me telling stories about a man named, Jay Bartow.  Jay was my earliest minister in my home church, Lakewood First Presbyterian Church.  Pastor Jay, as we affectionately called him, was the most influential friend and Pastor I can remember in my development as I transitioned from high school to early adult.  Jay led me to understand a deeper walk with God in Christ and taught me so many things about life.  He shares a number of my most important interests, including the writings of C.S. Lewis, camping, trout fishing, social justice, sports and, of course, Christian life.  

I am so grateful to Jay and his wife Gail for being there for me and all of my friends in our youth group in Long Beach.  We were fortunate and thrilled to have a special visit in our home with the Bartows last week.  It was a time of sharing, laughter and prayer.  

Subsequent to their visit, Pastor Jay preached a sermon as the retired Pastor of his church where he served for 40 years.  I am posting it here, in hopes you will read it and gain some insight to the blessing Jay was to me and my whole family.  My boys know camping, fishing, a Christian upbringing and many different values that we had in our home while they were growing up due to Jay's influence in my life.  Thank you to Rev. Jay Bartow for allowing me to share his sermon in this written form!
 -- Patient-Online
First Presbyterian Church of Monterey, CA

Light into a Darkened World
Jan. 15, 2017
Jay Bartow, Pastor Emeritus
First Presbyterian Church of Monterey, California



Texts: Isaiah 49:1-7; John 1:29-42

Every now and then we ask or are asked a question that literally changes our life.  Can you remember the day you asked or were asked, “Will you marry me?”  I can.  And the “yes” that I heard changed my life for good. I mean that literally. A cascade of good things have flowed into my life since that day.  We just celebrated fifty years of marriage and cherish my life with Gail more each day.

Another question that changed my life was asked of me in the Student Union at UCLA in September of 1962.  A fellow student asked if I would take a short survey of questions, and my car pool ride hadn’t arrived yet so I said, “Okay.”  At the close of the survey he thanked me for my time and asked one final question which I think I can remember verbatim: “Eighty five per cent of the collegians who have taken this survey have indicated a desire to deepen their spiritual life. Would you count yourself among them?”  I didn’t think too long about it before I said, “Yes.”

From that response came an invitation to meet again after reading a magazine that this student presented to me.  The magazine was a compilation of testimonies of collegians who had found meaning in their life through a relationship with Jesus Christ.  As I met with my new friend, John, the next Friday, we continued our conversation and he asked if I would like to read the Gospels with him. Since I had never read the Bible I thought it a good idea for me to become acquainted with this literature that has been so influential to the development of our civilization.

I was captivated when I began to read the words and ways of Jesus. I entered college an idealistic agnostic with a major International Relations, hoping to become a diplomat and to work for a more just and peaceful world. What Jesus said and did spoke so profoundly to the dilemmas facing our world that I came to conclude that his person and message was the best curriculum I could study in the pursuit of my goal.

Today’s text from John describes two incidents in which John the Baptizer speaks to his disciples about Jesus.  In verses 26-27 of John 1 we hear John say, “I baptize with water. Among you stands one whom you do not know, the one who is coming after me; I am not worthy to untie his sandal.”

The next day John sees Jesus coming and says, “Here is the Lamb of God who takes away the sin of the world. This is he of whom I said, ‘After me comes a man who ranks ahead of me because he was before me.’ I myself did not know him; but I came baptizing with water for this reason, that he might be revealed to Israel.”

That mysterious phrase, Lamb of God, is found nowhere else in the Bible. John is unique in using it, and de does so twice. Scholars have debated the possible meaning of the phrase, but I agree with the majority who believe it is a reference to the Passover sacrifice of a lamb each year during the most important holy day for the Jews. The sacrifice was offered to atone for the sins of the people.

Lambs are not particularly noble or powerful animals, but Israel was instructed to offer lambs without blemish in payment for their sins.  The fascinating thing to note here is that John does not limit the efficacy of the sacrifice to the Jewish people, but says the Lamb of God takes away the sin of the world. 

That phrase has been tumbling in my mind for the ten days since I gladly accepted my pastor’s invitation to preach this weekend as he and pastor Katie are at Calvin Crest with many others from our church. 

The sin of the world! Wow! That boggles my mind. That is a weight beyond computing. Even a cursory knowledge of history shows us a sad chronicle of violence, prejudice, malice and mayhem that brings a sensitive soul to tears.

I remember lying in bed one morning and my father lying down next to me to share one of those tender moments that lend such strength to children. I asked him, a veteran of World War II in the Pacific Theater, “Dad, why are there wars?” He didn’t have a ready answer, but as we pondered this painful question I sensed that he shared with me a desire to work to end war, and that no doubt was one of the seeds that led me to want to be a diplomat.

The Greek word translate “sin” which John uses is hamartia and is a term used in archery having to do with missing the mark.  When Jesus was asked which commandment was the first of all he replied: “You shall love the Lord your God with all your heart, and with all your soul, and with all your mind, and with all your strength. And the second is this, ‘You shall love your neighbor as yourself.’ There is no commandment greater than these.” (Mark 12:29-30)  That is the succinct definition of the target or goal of living. 

Any honest person has to admit that he or she does not always hit that target, and when we look at history we see the misses writ large.  God sends Jesus to wipe away our misses and to redirect our lives in ways that reflect love of God and neighbor.

When two of John’s disciples approach Jesus, curious to learn more about this mysterious figure who is God’s Lamb, Jesus asks them, “What are you looking for?” They reply, “Rabbi, where are you staying?” A question followed by a question, but the upshot is they want to be with Jesus, they want to hang out with him. And he graciously says, “Come and see.”  And that changed their lives and changed the life of the world, because those first followers reached out to others who in turn reached out to others and so on down through the centuries to where you and I connected with this same drama.  

Who is this mysterious figure Jesus of Nazareth? How could he possibly take away the sin of the world?  Come and see. Apprentice yourself to him. Take him up on his offer which my friend Eugene Peterson so beautifully translates from Matthew 11:28-30.  “Are you tired? Worn out? Burned out on religion? Come to me. Get away with me and you’ll recover your life. I’ll show you how to take a real rest. Walk with me and work with me—watch how I do it. Learn the unforced rhythms of grace. I won’t lay anything heavy or ill-fitting on you. Keep company with me and you’ll learn to live freely and lightly.” (Mt. 11:28-30 The Message)

How does that sound to you? It sounds like a great offer to me: learn the unforced rhythms of grace, learn to live freely and lightly. And since I first apprenticed myself to Jesus I have found no small measure of truth to that offer. His grace has enabled me to relax inside my own skin to a degree greater than I could have on my own. His forgiveness has freed me to do and dare in the confidence that if I stumble and fail he is ready to pick me up, help me dust myself off, and try again.

You ask, how does one hang out with Jesus since he is not physically present on earth? It is true that he is not present as he was those brief years in Palestine, but he promised to baptize his followers with his Spirit, to come again to them after he physically departed. And when you find yourself reaching out to others in love, giving of yourself and substance because you want to and not because you have to, you begin to realize that his Spirit is at work in you and in the world.  

Paul also reminds us that his followers are the body of Christ, and individually members of it (1 Cor. 12:27).  We see evidence of Christ at work in the world through his followers. Many of the world’s finest universities and hospitals were begun and sustained by ardent followers of Jesus: Harvard, Yale, Princeton, Columbia Presbyterian Medical Center to name just a few of hundreds of institutions inspired by the person and message of Jesus. 

Many of the best schools and hospitals in Africa. Latin America and Asia and Oceania, were likewise begun out of similar impulse.  This Friday I fly with a team of eleven others to Cuba to help install a water purification system and do health and hygiene education in a church in the eastern part of the island near Santiago. Every time I go on a trip like this I meet dedicated followers of Jesus who volunteer their time to learn how to build and run these systems and to educate their communities in proper hygiene and use of this water.  We work together with energy, enthusiasm, imagination and love.  And when children and parents no longer get sick by drinking unsafe water we thank God for the work we accomplished as partners.

The world-wide nature of the church has always inspired me and confirmed to me that the power of the good news is truly saving across all manner of cultural and linguistic barriers.

The passage we read from Isaiah 49 makes clear that God has a greater task for his servants than simply to restore the fortunes of their own nation. God proposes to make them a light to the nations that God’s salvation reach to the ends of the earth.  This world-wide calling and vision for God’s people was a new idea. Up till then each nation and cultural group had its distinctive deities who were primarily concerned with the welfare of their group, and not the world at large. Often they saw their deities and opposed to others whom they saw as enemies. 

Judaism and Christianity, which grew out of it, believe in a God who desires that the whole world experience God’s Shalom, a word that means harmony and wholeness and fullness of life. Salvation is not just a ticket to another world when we die, it is entry into fullness of life here and now and forever more. That is why schools and hospitals and proper nutrition and potable water and honest and just governance have always been part of the mission of Christ’s followers.

Many of you may not have the inclination or opportunity to go abroad to share in the work of Christ, though you certainly facilitate it through your gifts and prayers. But think of your world, your family and friends and co-workers and neighbors.  All of us know persons who are battling darkness and doubt and fear and grief. How can be bring and be light to them? A card, a visit, a shared meal. Simply being present and listening to others attentively and with kindness channels hope and light to them. If you have been on the receiving end of such kindness you know this to be true.

Last week Gail and I visited family and friends in Southern California, and one visit in particular warmed my heart. My first call was to a church in Long Beach where I was pastor to students. Early on I visited several high schools to meet students on their own turf. One afternoon after school I met a young man named Dan Brooks who was practicing free throws, and we struck up a conversation as we shot baskets. It turned out that he sporadically attended the church where I worked and I invited him to our high school group which was just about to begin a weekly Bible discussion group. 

He was one of the first four to come, and the message of Christ connected with him and he began to invite others, and soon we had thirty-five students coming and seeing, to borrow the language of John’s Gospel. And what they saw was the Spirit of Christ bringing hope and purpose and life to their fellow students.  

Four and half years later I was called here to Monterey, but in the intervening years good things were happening in Dan’s life and the lives of many others in that group. He worked as a youth pastor for a while and then as a public school teacher at the elementary level. He had a special charisma and touch with children and their parents. Later he worked his way into administration and personnel management in one of the top positions of a district. He and his wife raised three sons who are all doing well. But then Dan began to notice some physical problems which turned out to be the first stages of a Parkinsons-like illness which has cut short his work career.

But that doesn’t stop Dan from serving and loving others. He has written a memoir and launched a blog titled wewillgoon.com. And that is what he does. On Thursdays he sings at a nearby convalescent hospital. That he gets there slowly and with a walker tells them it isn’t easy, but he does it because he knows his visits bring some light to the residents there.  He has made them part of his world. 

At Dan’s home I noticed a copy of Petersons The Message that he had received this Christmas. When he reads that passage I cited earlier where Jesus says,  “Walk with me and work with me—watch how I do it. Learn the unforced rhythms of grace. I won’t lay anything heavy or ill-fitting on you. Keep company with me and you’ll learn to live freely and lightly,” I am certain he will say a loud amen!

And so can you if you will dare to come and see who Jesus is. If you want to explore how to begin that journey I will be up front here in the chancel after the service and will be glad to answer your questions as my friend John so patiently did for me my freshman year of college.-- All Rights Reserved Used by Permission of Rev. Jay Bartow 2017


Monday, January 9, 2017

San Diego Choir for Parkinson's Patients; M. Streep Speaks Up for Disabilities

I couldn't help my excitement to receive a link from close friends about a Choir in the San Diego area for Parkinon's Patients.  You might want to go and read the whole article here:  Parkinson's Patient Choir.  It has been shown that the disabling effects of Parkinson's Disease, and other Parkinsonism-Plus conditions such as my diagnosis, include vocal difficulties known as dysarthria.  Singing is a very beneficial therapy for vocal issues caused by a degenerative brain disease.  A speech and language therapist started the inaugural choir for Parkinson's sufferers known as the Tremble Clefs in Scottsdale, Arizona in 1994.  My Uncle Ned Brooks, who was a Parkinson's patient who passed due away early in the last decade due to its complications, was in a choir for PD patients in Scottsdale at that same time, so I am confident that he was likely in that very group!  Thank you to my friends Lori Copeland and Marlene Fisher for sharing this information with us!

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II Corinthians 12:10 
Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am weak, then am I strong.

I couldn't help notice the story about Meryl Streep gracefully speaking about President Trump's ungracious physical and verbal mockery of a journalist he came across on the campaign trail.  The New York Times reporter, Serge Kovaleski, has arthrogryposis, a congenital condition affecting the joints. Arguably one the greatest screen actors in the last several decades, Ms. Streep spoke gracefully and articulately about the truth, stating that this was insulting to her and many others.



Trump didn't wait long to tweet that this had never occured, which is hard to stomach given the number of times disabled people such as this man, myself and many friends of ours, had to watch the newsreel showing Donald Trump defensively depicting this fellow in a mockingly insulting manner.  He claims it didn't happen.  You decide:


I do not have sympathy for Trump or those who voted for him if they claim that "Hollywood-types" are always attacking the lack of politcal correct-ness in society. PLEASE!  Don't insult the intelligence of those with the neuromuscular/skeletal disease that this reporter suffers from, or those of us with Parkinson's or Parkinsonsonian disorders that have very similar involuntary movements.  Donald Trump is the man with all the power and an opportunity to shed light on the struggles of American citizens.  When will he begin to be the President for all the people?  If he is insulted that some are offended and this results in his complete denial of reality, we have more of an issue than a serious breech of proper standards of courtesy and respect.

I look to my Presidents-- e.g., George W. Bush, Barack Obama and now President Elect Donald Trump-- to be a champion for awareness of Parkinson's, MSA, PSP, FTD and CBD, among many other conditions.  He is our leader and should represent all Americans, even those of us who have movements and postures of our limbs and bodies that may not be easy to look upon.  We deserve that much respect.  Lying about it is just beyond disappointing and hurtful-- it is despicable.

Please put down the Twitter and start reading about national security and demonstrating faith in the good people of our US government that are going to be aiding you in your efforts and maintaining your safety and well-being.

I believe in the office of the President and want to give you the respect and honor that is due your victory and your position.  Would you in turn please honor those of us with physical disabilities?
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Romans 5:3 
And not only so, but we glory in tribulations also: knowing that tribulation worketh patience.

Thanks for reading and supporting! -- Dan Brooks, Ed.D.


Thursday, December 29, 2016

Grace as the New Year Begins

In a few days, we will enter a brand new calendar year.  There is nothing magic about putting a new 2017 calendar on the wall and there certainly isn't any certainty that we will change as we might desire to do.  However, I do believe these cultural landmarks and measuring sticks do help us to organize the spiritual and emotional sides of our lives by reminding us to consider who we are and if we are true to our purposes as we live each day.

I am reminded that God is the center of all that I do.  When I forget that, I get off course and end up tossed and turned by the churning seas of trouble.  Looking to Him, who is my creator, and He who leads me in the direction I take and how I respond to the good things in my life and the difficulties, as well.

Look back over your life and consider the big picture -- hasn't God been there all the while, opening doors, bringing comfort, guiding and directing you and bolstering your courage when you can't see how to go on?  I can't help but rejoice at the end of this year for the many ways God touches our lives and His graciousness toward me and my loved ones-- family and friends!

I thank God above for our sons, our daughters in law, our granddaughters, our parents-- all of which are living-- and our brothers and sisters in our nuclear families.  So many blessings in our church, our health care, our doctors, our Pastors, our many friends and all of the neighbors and community we are blessed to come in contact with!  God has brought us a new Movement Disorder Specialist, a wonderful Primary Care Doctor and a very dedicated new Neurologist at our clinic.  Our Neurosurgeon did such a great job on my surgery to implant my new DBS device in my chest.  The healing has been so smooth!

I think over my life and the decision I made to respond to His call and the guidance I received in  my early years in Lakewood, CA as a high schooler-Christian from my Pastor, who led our youth group (and me) in the ways of Jesus. He also taught me so many practical things about life-- camping, fishing, tennis, social justice and walking with God in Christ.

Yesterday, we received a call from this very high school Pastor (who was the Associate Minister of our church) whom I haven't seen in 40 years!  He and his wife, who is also my friend, are coming to visit us for coffee next week. We are so looking forward to seeing them. We will have the chance to thank them for the influence their lives had on my life, and indirectly, on those of my children.

God has been good.  He has been faithful. Not everything goes as expected, but He is with us, holding us through it all.

In II Corinthians 7:10, Paul writes:

"Godly sorrow brings repentance that leads to salvation and leaves no regret..."

I know that we suffer but not in proportion to how Christ has suffered on our behalf.  Through it all, we can say, "To God Be the Glory, for the things He has done!  All that I am and ever hope to be: I owe it all to thee."  -- Andre Crouch  

Below is a video of this very song that I recorded in approximately 2010, when my hands and voice weren't as affected by Parkinsonism-Plus.

 
 Happy New Year, my friends! Thanks for your much support and prayers.  -- Dan

Sunday, December 18, 2016

35th Anniversary and Peace

As Christmas approaches, I want to wish each of you happy holidays, in whatever way you and your family express them.

Karrie and I are celebrating our 35th anniversary December 19th.  I am so grateful to her and so blessed to be her husband.  She has brought me so much joy and happiness, along with our three wonderful sons.  Her caregiving each day and all the hard work she does and the worrying she has to go through each day are overwhelming.  Thank you, sweetheart!

Karrie at the Back Bay in Los Osos, Home of our Dearly Departed Cousin, Don Young.
At this time, I grateful for the successful surgery and my new generator, sending electricity to my brain to block faulty signals.  I am thankful that we have a new doctor, a great Movement Disorder Specialist at Loma Linda.  I may only see her as long as the insurance allows, but so far I have been there twice.

I want to say that I realized that this is a great time of year to tell those you have caused hurt or misunderstanding with, that you are sorry.  I have so many faults and I get so full of pride. I regret that I don't always do my best in responding to others.  We need peace within families, communities, churches, and even countries.

Humility and love could help our country as we see changes in our governance and expressions of pride and the lust for power.  God help us to look within our own hearts, individually and collectively, and repent of the attitudes that cause pain and division.  This is what Christmas is all about.  The birth of a humble King coming to bring a servant's message to a world clamoring for victory and dominance.  We recall the words of Isaiah where he tells of the coming Christ,

"They will beat their swords into plowshares and their spears into pruning hooks. Nation will not take up sword against nation, nor will they train for war anymore."  Isaiah 2:4

Let us seek to make peace as individuals and work together as a nation to do the things that are best for all people, and not seek to win, but rather to be whole and act in a manner which benefits others, as well as ourselves. -- Patient-Online

Saturday, December 10, 2016

Recovery from Surgery Hard Due to Respiratory Infection

Well, we got home Thursday, December 1, 2016, feeling great and everything was looking good!  The complications began the next day, Friday, December 2, 2016, when I suddenly began to get the cough that Karrie had been getting for a few days prior to surgery.  I usually don't get the things she does, and we both got our flu shots early in September, so I wasn't expecting anything.

As I write this blog entry... feeling a bit stronger and getting a break from coughing.
That evening I got the chills and within 15 minutes, my temperature began to rise.  Mind you, I have run a point low at 97.4 since the Shy Drager symptoms began years ago.  When I got up to 102.2, I knew it was as severe as 103.3 would be for the average person.  The chills increased, the cough went deep into my lungs and I began to have fluid getting stuck in my airways.  At times that night we weighed going to emergency to make sure I didn't lose my breathing freedom from all of the gunk building up.  It was scary!

It was a long tough road.  I was in bed for two and a half days and was awake 5-6 hours of that time.  Remember, Karrie wasn't much better.  She had a lower but steady temperature, having had her higher temperatures earlier in the week.

Meanwhile, the wound was a good 5-inch gash and healing very well.  I do not have much pain to speak of now, and the cough and aches in my body are still present, but my temperature is back in the low 97's, which is my normal reading since Shy Drager.

Looking back, December 1, 2016 wasn't a great day to get the generator replaced because the weather was the coldest in the entire fall and it was in the 60's in the house without heating it.  This weather condition made it the worst time to have a cold, let alone surgery to replace my generator.  Being one who chokes on foods and fluids several times a day, I feared the worst-- a bad case of pneumonia-- as I had earlier this year in June.  The antibiotics that my neurosurgeon prescribed were effective and I believed helped me fight off the worst.

Saturday, December 10, 2016

I hadn't been out of the house since the surgery and just returned from a car ride and drive through lunch at Bakers.  Karrie and I ate it in the car and I felt a bit more normal for having been out in the world.

The respiratory condition is still working itself out with coughing and aches, but I can tell we are out of the woods!  I can see myself recovering.

The new generator has had an immediate effect.  My last one was worn out.  I hadn't realized it, but looking back I was: a) falling hard a few times in the past 4-6 weeks, b) choking on foods and liquids daily (dysphagia), c) biting my tongue, cheek and lips at each and every meal!, and, d) just a lot more need for my walker and wheelchair to get around because of the poor coordination of my limbs.  This change was needed.

I am swallowing much, much better and chomping on my face and tongue so, so much less!  I had sores all over my mouth and sometimes I would get so bewildered after yet another uncoordinated bite out of my lower lip that I could either cry or laugh forever! Such an improvement.  I am getting around better and using my walker in the home at night only, but not during the daytime hours.

The only negative may be that my speech has slowed this last week (dysarthria) and I am beginning to wonder if it is a side effect or just the cognitive slowing that I am experiencing.  It sounds to Karrie (and myself) like slow and drawn out words and phrases.  It feels to me like it is getting the words from the thought to my speech apparatus, but I will have to ask the movement disorder specialist/neurologist about it when we return to see her on Monday.

Thanks for all the support and your prayers!  -- Dan

Friday, December 2, 2016

Late Robin Williams had Lewy Body Dementia

I soberly read with great interest a story about Robin Williams that explained that his Parkinson's Disease condition was actually a Parkinson's Plus syndrome called Lewy Body Dementia.  Lewy bodies (named for Lewy who originally identified them) are protein clumps that form in the motor center (basal ganglia) in Parkinson's Disease thus destroying cells that control normal movements.  In Lewy Body Dementia these clumps are also found in the cortical brain tissue where thinking, planning and emotions occur.

Robin's condition would include the tradtional P.D. symptoms: slow movements, balance trouble and tremors.  Because his diagnosis was ultimately LBD, he also would have suffered from: hallucinations, delusions, executive function issues, depression and severe mood troubles.  Read more about Mr. Williams' condition here.

What a great talent and such a highly intelligent person.  After he died, I recorded a song in the form of a video to reflect the way Robin's last years, weeks and days may have been like to experience.  --Patient-Online



Thursday, December 1, 2016

Successful Implant of Brain Pacemaker

Today I was in the OR at Riverside Community Hospital where my fantastic neurosurgeon successfully removed and replaced the generator/stimulator that works in concert with my two brain implants.  This treatment has been successful and surely has extended my life and provided better mobility for me.  4 years ago, I used a wheelchair much more of the time and had more trouble speaking.

Today, I had  a very smooth surgical process and my esteemed brain surgeon completed the surgery and reset my custom settings for my symptoms.  Sending this electricity into my brain center where motor functions are governed,  blocks bad signals so the good ones can be carried by my nervous system to my body's muscles and organs in order to help improve my quality of life dramatically.  Here is a picture of the surgical site:

Inside this 4 inch incision is a scarred pocket where the previous generator was implanted 4.5 years ago.  This is the day of my replacement surgery.  From this, two cables move up my neck (under skin) and up across my head.  Two implant probes dive down through my brain tissue about 4.5 inches. 
We are home, sore and tired, but very grateful and glad to have this behind us! -- Dan