Yesterday, I went live and gave a mini-concert from my couch.  I have posted it below this should update you on the latest and my medical ch...

I depend my DBS system (Deep Brain Stimulator) greatly.  It smooths out motor movement to some degree and helps preserve urinary function, s...

  I have a link to the playlist for my album A LONG TIME COMIN' below. Go there to hear all the tracks and you can save them for free....

Susan Edwards 2023 - Used by Permission   In recent posts I have filled you in on all that is going on with my brain and body.  Both atypica...

Since my last post, I have received a number of comforting and uplifting comments that we have enjoyed reading. Thank you for your responses...

Dear Friends, I know you may have been wondering why I have not written an entry in nearly two years. I have gone through so much, as we ...

It has been an exciting summer as we have also turned to fall.  I went through the change of trach tube from uncuffed to cuffed, with the ai...